scoliosisstory "May I live like the lotus, at ease in muddy water." Don't pray for an easy life.. Pray for the strength to endure this one.. I never thought I would live my life with chronic pain.. But after a while it just becomes apart of life.. Somehow you find the strength in each day to keep going. Always remember you are so much stronger than you think.. Never ever give up! Whatever life has to throw at you, you can handle it!
#scoliosis #scoliosissurgery #spinesurgery #back #curvy #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion
2h

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scoliosisstory Be proud of your scars.. You fought hard to get them! You're a stronger person because of what you've been through! You all inspire me so much, with everything you go through you still manage to stay positive and help others! It's truly inspiring! I don't know where I would be without all of you! I love you all so much!
#scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion
1d

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scoliosisstory I hope you all have, had a great 4th of July weekend! I spent it in idaho.. It is so gorgeous here! I haven't experienced too much pain except for today. I think I pushed my self too hard! I love you all so much!! #scoliosis #scoliosissurgery #spinesurgery #curved #crooked #painful #surgery #scar #battlescar #backbrace #scoliosisstory #fusion 4d
  •   kileee_annnn Oh my goodness! I live in Idaho falls! 4d
  •   scoliosisstory You do? I've been here all week, I love it here! @kileee_annnn 4d
  •   scoliosisstory @kileee_annnn most of my family is from idaho falls so were up here vacationing for a family reunion! ️ the weather here is so much nicer compared to where I'm from! 4d
  •   kileee_annnn This week has been the hottest yet! You came at a perfect time! And I hate it here! I think it's really boring! Where did you guys go for your family reunion? 4d
  •   scoliosisstory Where I live it's like 115 degrees everyday so this is like perfect weather! We went to a park in st Anthony! And we went to Mesa falls and then candy junction :) we swam in snake river too! :) @kileee_annnn 4d
  •   kileee_annnn Like at Gem Lake? Or at the docks? 115 degrees oh my that is too hot!! I have beer been to candy junction is it good? 4d
  •   scoliosisstory Candy junction was so good! :) and we just went swimming at the docks! @kileee_annnn 3d
  •   kileee_annnn Sounds like you had a lot of fun! 3d

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scoliosisstory Love this! Its so cute.. Always remember to smile you just might make someone else's day! ️ right now I'm on my way to a family reunion it's a 10 hour drive.. We did 5 hours yesterday and 5 hours today! I haven't experienced too much pain and I'm trying to take advantage of that while it lasts! ️ love you all so much!! I hope you have a good day! #scoliosis #scoliosissurgery #spinesurgery #curved #hospital #surgery #scar #beautiful #battlescar #backbrace #scoliosisstory #spinalfusion 7d

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scoliosisstory I got tagged in this a lot so I figured i would do it!
Age: 16
Height: 5'3
Eye color: Hazel
Hair color: dark brown
Favorite food: uhh everything.. I'm not picky!
Favorite color: pink
Favorite animal: GIRAFFE!!
Best friend: @no_fear_just_faith
Favorite drink: love me some coke!! #scoliosis #scoliosissurgery #spinesurgery #crooked #hospital #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication
1w

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scoliosisstory "Speak Up For Scoliosis" ... Scoliosis needs more awareness. Not many people know what it is or how it affects the person who has it! So speak up for scoliosis and spread awareness!! @no_fear_just_faith Made an amazing YouTube video for scoliosis awareness I put the link in my bio, so you all can watch it!!:) #scoliosis #scoliosissurgery #spinesurgery #curved #crooked #hospital #pain #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #speakupforscoliosis #scoliosisawareness 1w

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scoliosisstory You are SO much STRONGER than you think! Whatever it is you are facing whether you are going through bracing, surgery, physical therapy, I know you can do it! You can overcome anything you put your mind to!! Never ever give up! ️ Love you all so much!!#scoliosis #scoliosissurgery #spinesurgery #back #curvy #crooked #hospital #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion 1w

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scoliosisstory Hi everyone!! It's @scoliosisstory I'm back from camp! I had a really good experience.. But I also experienced a lot of pain. But I pushed through and I made it!!! Thank you to the lovely @no_fear_just_faith for posting for me this week! She was a huge help! I love her to pieces!! I hope you all had a wonderful week!! (This is one of the pictures I took while up at camp:) I love you all so much thank you for all of the support you have shown me!! #scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication 2w

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scoliosisstory Bre (@no_fear_just_faith) here posting for Madi :) she wanted me to share this pic today & this is what she has to say about self confidence public!!♡♡ "I've heard so many stories of girls who don't wear their brace because they are afraid of being judged or because often times people stare... I know when I go out in public with my brace on I have people stare at me.. Sometimes they aren't nice about it either! They'll whisper, sometimes even point.. But I don't mind! I've had scoliosis since I was born.. It's just who I am so I never really felt different! Until I had to wear a brace after my 1st surgery.. I was mortified, I hid, I cried.. I yelled I hated the way I looked In a brace.. But as time went on and I went through 6 braces.. Now I'm on my 7th brace and I've gained this confidence, I love to show off my brace, I am PROUD of my scoliosis.. And how far I've come! So those of you who don't wear your brace because you are afraid of being judged.. Just keep your head up, smile, and ignore the stares! I promise you it will be better In the long run.. You are BEAUTIFUL with or without a brace.. Don't let other people bring you down because of something you cannot control! I love you all so much!!! " ️ Love, Madi (@scoliosisstory)

#scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion
2w

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scoliosisstory Hey everyone :) its @no_fear_just_faith posting again for Madi! She found this cool little chart on Pinterest & wanted me to share it! "It shows you where to place the electrodes on your tens unit for different types of pain! :) I absolutely love my tens unit, it has saved me many times! I even packed it for camping! :) Love you all" ️ Love, Madi (@scoliosisstory) #scoliosis #scoliosissurgery #spinesurgery #back #curvy #crooked #hospital #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #tensunit 2w
  •   thr33_little_birds_82209 Can you use a tens unit after fusion with instrumentation? 2w
  •   scoliosisstory Yes you can! @thr33_little_birds_82209 || @beauty_killz_23 Madi will be back on Saturday so u can ask her for her kik then! :) 2w
  •   scoliosisstory @nemo_gal I (@no_fear_just_faith ) would definitely rather use a tens than take medicine! You should give it a shot :) 2w
  •   nemo_gal I defiantly will give it a try I'm all about not taking medicine… I hate it idk y but I always have. 2w
  •   beauty_killz_23 Ooh thank u so much cuz I have scoliosis to and I'm not handling it so well and I need advice 2w
  •   nemo_gal Trying the TENS unit right now… rly hope it works… went white water rafting yesterday. Don't think my back liked it at all :/ 2w
  •   scoliosisstory I hope it works for you!!! @nemo_gal 2w
  •   nemo_gal Thx it feels a little bit better I just turned it off maybe I'll be able to sit up now. Barely could when I woke up 2w

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scoliosisstory Hey guys! Its @no_fear_just_faith posting for Madi since she will be at camp from Tuesday-Friday :) she is really nervous about being at camp because of all the pain she has been having so im sure she would appreciate some prayers and encouragement! Hope you are all having a great week so far♡ stay strong!! #scoliosis #scoliosissurgery #spinesurgery #curvy #crooked #hospital #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion 2w

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scoliosisstory Random picture of my front scar! With my first fusion surgery they took a bone graft from my hip to do the fusion! I love both of my scars.. For me its a symbol of what I've gone through and I'm proud of it! From Tuesday-Saturday I will be gone camping but the amazing @no_fear_just_faith will post and keep my account going for me! ️ super nervous about going but hopefully it works out! Love you all! #scoliosis #scoliosissurgery #spinesurgery #back #curvy #crooked #hospital #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion 2w

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scoliosisstory #repost of one of my favorite edits! Sorry I haven't posted for a few days! I haven't been feelin too good! Ive been getting ready to go camping and Today, I cried in the middle of the store... The pain was just horrible with every step I took! I don't know what happened or what's wrong because it is a new pain! Hopefully we can figure it out soon tho! "it's just a bad day, not a bad life"️ I hope you all had a good/pain free day! Love you!! Thank you for always showing me love and support! #scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication 3w
  •   skye_stander Hi there, I got diagnosed today and I'm going to see the consultant people and I'm really nurvous incase i need an operation I was wondering how long it took u untill u for ur operation and is it sore and how long where u in hospital 3w
  •   scoliosisstory I've had 4 surgeries.. I'm usually in the hospital for about 5 days! You get pretty sore but it gets better! @skye_stander 2w
  •   skye_stander Aw thank u I was wondering I'm not that bad mine is just at the bottom if u get what I mean but how many degrees is it to get an operation or to get a back brace2w
  •   scoliosisstory I'm not quite sure! I think it's 40+ degrees for surgery! But I'm not sure the exact degrees because I've had scoliosis my whole life! @skye_stander 2w
  •   skye_stander Aw thank you I'm seeing the doctor tomoz I'm soo scared but mine isn't that bad if u want I will dm u a pic of it😗 2w
  •   skye_stander Just sent u it 2w
  •   scoliosisstory Well it's good that the caught it early! So they can treat it early! :) @skye_stander 2w
  •   skye_stander Talk to me on dm 2w

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scoliosisstory I'm very nervous about this next step of my journey.. I have not been able to do much of ANYTHING for almost 3 years now. 3 years that is, 1095 days, 26,280 hours,1,576,800 minutes of not being able to do much at all.. My body has become so weak and so hurt.. my doctor told me i basically have no muscle holding me up or supporting my spine.. I was told it is going to get VERY, VERY painful before it gets better.. I was also told "you've come this far, you just have to tough it out, work through the pain." I'm VERY nervous and stressed about trying to regain my strength and starting intense pt.. but I know I can do it.. Taking this process one step at a time. thank you all for the continued love and support you have shown me through my journey!
#scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication
3w
  •   scoliosisstory @michellepress My physical therapist is the best in my area! I really trust him and like him.. He has followed my case through my whole journey! But thanks for the suggestion. 3w
  •   michellepress STOTT and CORE and Windsor Pilates are just branded styles. They do not adhere to Joe's original mission, style and intent. They will also not ew 3w
  •   scoliosisstory @scoliosisfight thank you! 3w
  •   michellepress Not be able to help you very much. And as private lessons are very expensive, you really want someone who knows how to work with your body and help it. 3w
  •   scoliosisstory Thanks for the suggestion. My physical therapist knows how to help me. He has followed my case, and knows the best way to help me. @michellepress 3w
  •   michellepress Best of luck. Really. I hope you can live a life of much less pain. 3w
  •   scoliosis__forever You CAN do this!!!! I believe in you!! PT has worked miracles for me (I just gotta remember to do the stretches. Ik it will do the same for u. U r a fighter!!!! U got this!!! Love yah 3w
  •   marisagettas Best of luck hon!!! 3w

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scoliosisstory So I went to the doctor yesterday and it went pretty good.. I've made lots of good progress as far as my lower spine! He was very optimistic and He said I'm doing great with that considering where I started with a huge deformity and failed surgeries! The scoliosis in My upper spine has not changed or moved.. I do have a split vertebrae and a little bit of spina bifida but nothing serious enough to fix right now.. He says all the pain has come from me being inactive, Since I haven't been able to do anything for almost 3 years now I have absolutely no muscle left.. So he wants me to start PT. And I'll be in my brace till September! He told me it's going to get really bad before it gets good so I just have to keep going and fight through the pain! My weird hip pain that feels like it's bone on bone is probably a sciatic nerve pain.. Which I will always have. It could also be from the way I walk because I have a low fusion! So for now I don't need anymore surgery and were going to try to strengthen my spine. It makes me really nervous and stressed but the outcome will be worth it!
#scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication
3w

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scoliosisstory "Pain is only weakness leaving the body" I love this quote! I went for a hike today.. And it killed me! My hip feels like it's rubbing bone on bone.. It's been feeling like that for a while but the hike just intensified it and made it worse! Luckily I only have 2 days until my doctors appointment so we can get all of this figured out! :) I hope you all are doing well! #scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication 4w

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scoliosisstory Never Give Up I've had a pretty rough few weeks.. But I'm not going to let that stop me! ️ I love you all and I hope you are doing well! #scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication 4w

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scoliosisstory Drew this for #scoliosisawarenessmonth! This drawing contains a few of the things that I have gone through or have used in my journey with scoliosis! surgeries, injections, bracing, pain pills, tens unit, hardware, scars.. +more! Scoliosis isnt just "a curve in your spine".. It so much more for some people!! I love you all and remember to Keep spreading awareness! (If you repost please give credit) #scoliosis #scoliosissurgery #spinesurgery #back #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #scoliosisawareness 4w

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scoliosisstory I've never done a warrior Wednesday.. But I decided to do one this week! This girl has been through SO much 2 surgeries, physical therapy, scans and tests and so much more! And she still continues to live her life to the fullest.. I have no idea how she stays so positive! Even with everything on her plate she still helps other people! She is so inspiring. We became friends at a time when we both really needed one! And I can't thank her enough for being a true friend to me! ️ happy (late) #warriorwednesday
#scoliosis #scoliosissurgery #spinesurgery #backsurgery #bad #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication
4w
  •   no_fear_just_faith Thank you so much, I love this!!! Thank you for always helping me through the hard times! I love you Madi♡ happy warrior Wednesday! 4w

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scoliosisstory Know the difference between a scoliotic spine and a normal spine! #scoliosisawareness
So I haven't updated you guys in a while so here's a little update: my pain has been really bad lately.. It's getting more and more painful to breathe (because of my top curve).. Sometimes my right leg will go completely numb... My ribs are very tender.. And my pain gets so bad it makes me nauseous sometimes. But I'm trying to stay positive! My surgeon is an AMAZING guy and he really knows what he's doing, so I am in good hands .. Hopefully on the 16th I can get some answers. I love you all so much and I hope you are doing well!
#scoliosis #scoliosissurgery #spinesurgery #back #curvy #curved #crooked #hospital #pain #hard #painful #surgery #scar #beautiful #battlescar #backbrace #brace #scoliosisstory #fusion #spinalfusion #recovery #doctor #medication
1mon
  •   chiaras_outfits I just saw ur profil and if it makes u happy, i have scoliosis too and i know, its not a beautiful thing Yeah because its like an impediment but you must stay strong like i'm trying to do..its difficult yeah but nothing is impossible..if you dream it you can do it:) so stay strong, you are not alone♡ 4w

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